Thursday, October 14, 2010

HSP

OK - the first thing you will notice about this blog is that despite living in near proximity to Brent for the last few years, I did not inherit any photography skills. In my defense, these were all candid quick shots. Ryan was recently diagnosed with Henoch Schonlein Purpura - an infammation of the blood vessels that is either not a big deal or really really scary depending on which internet comments you read. You can read more about it here:
http://www.medicinenet.com/henoch-schonlein_purpura/article.htm

We have been dealing with the intense lower joint pain that will make it suddenly really hard for him to walk, nausea, and a rash that covers his lower legs. Luckily the rash isn't itchy. Unluckily on the nausea front, I don't know how much more not eating his little bod can take. He was already skinny and I think I might have to go stock up on high calorie shakes in order to get him through the next month (we really need to perfect some fat transferring process so that he can take some of mine). My guess is that we will be starting the prednisone treatments and possibly some anti -nausea meds upon a followup dr's visit. Sometimes he does really great and we hardly notice anything and sometimes he feels like death is imminent. On the plus front, he is feeling so poorly today that all he can do is watch a little TV - thus giving me an opportunity to blog (which is RARE). We have to look on the bright side, right?
Posted by Picasa

2 comments:

  1. poor guy! (And I'm with you on the fat transfer thing!)

    ReplyDelete
  2. Poor guy! I read on the sites that hematuria is possible. (Blood in the urine for all you non nurse readers.) Has he donated some urine for testing?

    ReplyDelete

Polka Dots